I contacted Virginia Rehabilitation and they reopened up my case again so they can help me, as a disabled person, do as much as I can. Basically, some taking over some of my son's business. He had an eBay store before he became very ill last year. I opened an eBay store, to sell items he gathered and things we have here that can find a new home. Online yard sale. Getting ready to open an Etsy account to sell crafts I can get made. This blog you noticed has some ads on it...it's like a penny if someone clicks them but hey...every penny counts. I've been asked to help put together a book.
There are also some how to videos that I'd like to do to show folks some of the skills I've learned over the years and share those before I can't do them anymore. Only have to do that ONCE and it's preserved forever!!
Now it just is a matter of what I can get accomplished. This is not to get rich and it certainly isn't to work full time. Those days are over. I mean it's taken me weeks to get the accounts set up. I will have links on this page to those accounts, but as of today, nothing for sale is up. That will change this week. Not as fast as I like. I am really seeing how hard it is for me to function on a normal level ....but THAT IS OK!!! I'm alive and it's up and going!!
Little concerned VA Rehab wants my resume? There is no way I'm working a regular job in this shape! I believe I made that clear. I can't be relied on to be at a certain place, at a certain time, everyday, anymore. Old body don't work that way. I have to have the full 24 hours to do any part time or partial work.
I have to take a lot of breaks and plan to be rested up just to go to the store or the doctors. If it's a big day for me to be somewhere, then I don't do any mental or physical stuff for a couple of days before. Seriously. If I don't pace myself, then I'm DOWN for the count. I've screwed up several times recently, and there is NO exact schedule I work in.
People see me out now and just by looking at me can't tell what's wrong. I was standing in line couple weeks ago and someone I know looked at me and said, "I don't see a thing wrong with you." I told them, "Well my condition really hasn't chopped off any arms or legs, or disfigured me with horns growing out of my head and I fight being in a wheel chair, using a cane or a walker, but believe me, my doctor's and myself know I'm not well." What else can you say?
They don't see what I had to do to get there where they, "see me", functioning. They don't know that I'm having heart problems, or brain fog, or I have the feeling daily of having a never ending achy flu that NEVER goes away, standing there talking to them.
Nor do they know that many times, as soon as I hit the door home, I'm back in the bed, and sometimes for DAYS. They don't call it Chronic Fatigue for nothing. They don't know I sleep in 3 or 4 hour increments because pain wakes me up. I just have to ignore all of that and let them think whatever. Though I really get tired sometimes of hearing, "you don't look that sick". Ever heard never judge a book by it's cover? It works for humans too.
But what's helped me the most since about last Fall is I work in 15 minute segments. That 15 minutes came from a site called Flylady, I found about a year ago. It's a clean your house organization, motivation site. I was looking around at my disaster of a home looking for inspiration to take care of it. After being ill for a couple of years and then my son getting sick, I was trying to motivate myself to do something!!! Anything... it's still sort of a disaster but better than when I first started this.
They promote this idea you can do anything for 15 minutes and you take jobs you have to do in small 15 minute stages. There are days when I get very few 15 minute work segments done, but it helps me focus. Ed bought me a timer and I use it. I work 15 minutes and rest, work 15 more and rest. This is working for me. But I know how I have to function today in the world, would never work for a regular job.
On top of that I'm trying to figure out how to get materials and labor to help to fix what I call my "old barn". It's really not a barn but it is an old home place. The main part of this house is an old cabin over 100 years old, the one side was built about 1910, the back had porches that were boxed in and that's where I need to really get to work on.
So I hope this little enterprise is successful to get some extra funds in here. It does make me feel hopeful and hopefully useful. I'm not the person I used to be that could work circles around a job and get things accomplished like I did. Ed used to say I was, "busier than a one legged woman in a butt kicking contest", but I'm not dead yet.
Ed playing up at Big Walker Mountain Lookout |
Speaking of my Ed...few weeks ago he was hanging out in Jim Lloyd's barbershop when a news crew came in to do a story. They interviewed him about Rural Retreat's master plan. It's a couple of minutes long and you need to watch it to the end...that's ED and why so many who know him, not just me, just love this man!! Classic Eddie Atwell! He's going to tell you what he thinks!
Ed's News Interview
In the next couple weeks there are about 4 blog posts just about completed. Had to find some papers, and books I had here to cite. Found them, now to get them cited. Until next time, stay safe in the old world.
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